IDD Medical Health Home Initiative

In 2013 the North Carolina Council on Developmental Disabilities (NCCDD) funded the "Medical and Health Homes for People with Intellectual and Other Developmental Disabilities: Coordination, Collaboration and Community" to develop recommendations for the management and delivery of primary health care services and long-term services and supports.

In 2016 the NCCDD funded "From Planning to Action: Integrated, Collaborative Care for People with Intellectual and Developmental Disabilities" to evaluate two demonstration pilots designed to improve the capacity of primary and community healthcare providers to care for children and adults with I/DD through consultative access to medical and clinical professionals with I/DD expertise.

In 2017 the NC Department of Health and Human Services (DHHS) provided funds to enhance the work of the demonstration pilots and inform Medicaid redesign and strategic planning, with an emphasis on children with complex needs.

Our 2-year progress report can be found here.

The 2019 summary report submitted to the NC Council on Developmental Disabilities can be found here.

Team Agencies

The Arc of North Carolina is committed to securing for all people with intellectual and developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work and play.

The Autism Society of North Carolina improves the lives of individuals with autism, supports their families, and educates communities. ASNC provides a wide selection of educational material, media and access to events to help families and providers you equip yourself with knowledge to tackle autism.

Easter Seals UCP is committed to being a lifelong partner to people with intellectual/developmental disabilities and mental health challenges by working side-by-side with adults and children who are managing disabilities and mental health challenges.

"The Medical Health Home Initiative has been instrumental in increasing awareness of the complexities that arise from individuals trying to navigate the healthcare and disability service systems. The project has done a tremendous job of raising awareness of the issues, challenges and opportunities that reform presents."

-Systems Change Agent

Community Academic-Provider (CAP) Consortium

The CAP serves as an advisory group that brings together the strengths, unique skills and perspectives of community members (individuals with a disability, family members, direct support staff, advocates), academic partners (faculty, students, and researchers), health care and disability providers, government officials, and policymakers.

In addition to individuals with intellectual and developmental disabilities and family members, the following organizations are members of the Community-Academic-Provider Consortium.

Members of the Community-Academic-Provider Consortium:

Carolina Institute for Developmental Disabilities, UNC-CH

The Carolina Institute for Developmental Disabilities is a comprehensive program for services, research, and training relevant to individuals with developmental disabilities and their families.

Community Based Care, LLC

CBC provides support to agencies serving the needs of the Intellectual and Developmental Disabilities ("I/DD") community across the southeastern United States.

Community Care of North Carolina

To improve the health and quality of life of all North Carolinians by building and supporting better community-based health care delivery systems.

Disability Rights North Carolina

Disability Rights North Carolina (DRNC) is NC's federally mandated statewide protection and advocacy program committed to promoting and preserving disability rights in the North Carolina.

The Dept. of Health and Human Services

In collaboration with our partners, DHHS provides essential services to improve the health, safety and well-being of all North Carolinians.

Duke University School of Medicine

In advancing health together, we will deliver tomorrow's health care today, accelerate discovery and its translation, create education that is transforming, build healthy communities, and connect with the world to improve health globally.

Eastern Area Health Education Center

Bridging healthcare & education for students & providers throughout the region.

Family Support Program, Mission Hospital

The Family Support Network at Mission Children's Hospital offers an extensive lending library of resources related to raising a child with a wide variety of developmental, physical and medical concerns.

First In Families NC

First In Families of North Carolina supports people with disabilities and their families to achieve short and long-term goals as active contributors to their communities.

Monarch

Monarch is a premier, North Carolina provider that supports thousands of people with intellectual and developmental disabilities, mental illness and substance use disorders.

NC Academy of Family Physicians

The North Carolina Academy of Family Physicians (NCAFP) is the Old North state’s largest specialty medical association, with a membership of over 4,000 family physicians, family medicine residents, and medical students.

NC College of Emergency Physicians

The North Carolina College of Emergency Physicians (NCCEP) is a chartered chapter of the American College of Emergency Physicians.

NC Community Health Center Association

NCCHCA is comprised of membership from each of the 40 health center grantees, aspiring health centers and other partners. These health center grantees and Look-alikes operate over 220 clinical sites and served over 500,000 patients in 2016.

The NC Council on Developmental Disabilities

Through advocacy, capacity building and systems change, the North Carolina Council on Developmental Disabilities improves the opportunities and lives of over 180,000 North Carolinians with intellectual and developmental disabilities (I/DD) and their families.

Tammy Lynn Center

Founded in 1969, Tammy Lynn Center for Developmental Disabilities empowers families and enriches the lives of children and adults through education, community and support services. We provide hope and opportunities for individuals to learn, live and grow to their fullest potential.

TEACCH, UNC-CH

A University-based system of community regional centers that offers a set of core services along with unique demonstration programs meeting the clinical, training, and research needs of individuals with Autism Spectrum Disorder, their families, and professionals across the state of North Carolina.

Trillium Health Resources

Trillium Health Resources is a leading specialty care manager (LME/MCO) for individuals with substance use, mental illness and intellectual/developmental disabilities in eastern North Carolina.

Vaya Health

Vaya Health works with healthcare providers to help people with behavioral health or developmental disability needs find healing and hope on their journey toward whole-person health.